Conference

Loneliness by Oliver Steiner


Loneliness by Oliver Steiner

1st Global Conference

The End of Life Experience
Dying, Death and Culture in the 21st Century

including a guided tour of Belém and the Jeronimos Monastery, Lisbon

Saturday 17th March 2018 – Sunday 18th March 2018
Lisbon, Portugal

This inclusive interdisciplinary conference explores dying and death and the ways culture impacts care for the dying, the overall experience of dying, and how the dead are remembered. Culture not only presents and portrays ideas about “a good death” and norms that seek to achieve it, culture also operates as both a vehicle and medium through which meaning about death is communicated and understood.

A central theme in our meeting this year will involve tracing on-going and profound shifts in contemporary attitudes toward death. The “Lisbon mandate” asserts palliative care to be a fundamental human right, one that is based on the right to the highest attainable standard of physical and mental health, and one that continually explores implementation and design thinking that put into place health policies that address the needs of patients with life-limiting or terminal illnesses. Building on this mandate, the conference brings together a wide variety of disciplines to consider these goals. Lisbon has a rich history in forging provocative, new, creative, and interdisciplinary paths forward that expand how palliative care is defined, offered, and accessed. Our conference will explore these connections as well as those between contemporary technologies, social media hubs and current health care delivery systems that impact current end-of-life issues and decisions. Included in our discussions will be the experience of bereavement and grief, particularly in relation to how patients, staff and survivors intersect amidst newly emerging care settings.

We welcome submissions that engage medical, therapeutic, cinematic, historical, ethnographic, ethical, literary, anthropological, philosophical, theological, political, or artistic approaches to relationships between dying, death and culture, including:

  • How might health care systems integrate empathic design principles across the entire spectrum of the end of life experience? How might new technologies offer new propositions for models of care?
  • How might we implement best practices in high-quality, patient-centred care?
  • How do options such as Physician Aid in Dying (sometimes called Physician Assisted Dying) factor into contemporary dying trajectories, and how best might we consider the quality vs. quantity balance?
  • How might cultural, spiritual and traditional belief systems and practices more fully empower our relationship with mortality, both in personal and professional settings?
  • How are cultural attitudes toward death and dying currently depicted across various artistic and media platforms?

We welcome everyone who struggle to understand, assess, re-imagine and/or improve the end of life experience. Augmenting our rich conversations, our ethos aspires to create essential partnerships that can drive local visions for patient-centred, high-quality care that can help transform the end of life experience in differing geographic environments. To that end, we invite collaboration with organizations and individuals ready to change the conversation about living and dying.

Progressive Connexions also invites papers from caregivers, artists, therapists, theologians, thought leaders, stake holders, medical professionals, entrepreneurs, designers, patients, activists, journalists, policy makers, developers, technologists, and academics from across these and other disciplines that respond to or innovatively (re-)frame any of the following additional core conference themes listed below:

1: Health Care Systems: Patients, Staff, and Institutions
Modern Health Care Delivery Systems and Care for the Dying
Palliative Care
Hospice
Elder Care/Ageing in Place Models
Trauma and Emergency Care
Nursing Homes/Skilled Facilities/Residential Care Facilities for the Elderly (RCFEs)/Assisted Living
Clinical Competencies in Pain Management and Symptom Control
Measurements, Incentives, Regulatory Statutes, and Recommendations
Continuity of Care Across Treatment Settings
Interdisciplinary Care

2: The Caregiver-Patient Relationship
The Obligations and Virtues of Caregivers
Medical Paternalism and Respect for the Patient, Autonomy
Truth-Telling/Truth-Hearing
Informed Consent
Medicine in Multicultural Societies
Contested Therapies Within the Physician-Patient Relationship
Conflicts of Interest; Problems of Conscience
Caregiver Stress/Caregiver Burnout/Compassion Fatigue
Being With Someone Who Is Dying
Assessment Challenges/Barriers

3: End-of-Life Issues and Decisions
Defining Death
Organ Transplantation and Organ Donation
The Interplay of Ethical Meta-Principles at the End of Life
Nonmaleficence
Beneficence
Autonomy
Death Anxiety
Choosing Death
Advance Directives/Advance Planning/Physician Order for Life-Sustaining Treatments (POLST)/Do Not Resuscitate
Considering End-of-Life Issues and Decisions and Legislation

4: Relationships Between Death and Culture:
Dying, death and the internet
Dying, death and social media
Dying, death and music
The end of life experience in literature, film, theatre, television and radio
Death and athletics
Death in comic books and graphic novels
The architectures of dying and death
Dying, death and advertising
Consumerism and the end of life

Update
The Cambridge Quarterly of Healthcare Ethics will be publishing a themed special edition under the guest editorship of Nate Hinerman focusing on themes arising from discussions held at the conference. Subject to the normal review processes operated by the journal and Cambridge University Press, a small number of submissions will be invited for development and inclusion in the themed edition. https://www.cambridge.org/core/journals/cambridge-quarterly-of-healthcare-ethics

What’s so special about Progressive Connexions events?

A fresh, friendly, dynamic format – we at Progressive Connexions are dedicated to breaking away from the stuffy, old-fashion conference formats, where endless presentations are read aloud off PowerPoints. We work to bring you an interactive format, where exchange of experience and information is alternated with captivating workshops, engaging debates and round tables, time set aside for getting to know each other and for discussing common future projects and initiatives, all in a warm, relaxed, egalitarian atmosphere.

A chance to network with international professionals – the beauty of our interdisciplinary events is that they bring together professionals from all over the world and from various fields of activity, all joined together by a shared passion. Not only will the exchange of experience, knowledge and stories be extremely valuable in itself, but we seek to create lasting, ever-growing communities around our projects, which will become a valuable resource for those belonging to them.

A chance to be part of constructing change – There is only one thing we love as much as promoting knowledge: promoting real, lasting social change by encouraging our participants to take collective action, under whichever form is most suited to their needs and expertise (policy proposals, measuring instruments, research projects, educational materials, etc.) We will support all such actions in the aftermath of the event as well, providing a platform for further discussions, advice from the experts on our Project Advisory Team and various other tools and intellectual resources, as needed.

An opportunity to discuss things that matter to you – Our events are not only about discussing how things work in the respective field, but also about how people work in that field – what are the struggles, problems and solutions professionals have found in their line of work, what are the areas where better communication among specialists is needed and how the interdisciplinary approach can help bridge those gaps and help provide answers to questions from specific areas of activity.

An unforgettable experience – When participating in a Progressive Connexions event, there is a good chance you will make some long-time friends. Our group sizes are intimate, our venues are comfortable and relaxing and our event locations are history-laden and suited to the event. And to further tickle your appetite for exploration, learning and discovery, our Lisbon 2018 event package includes personalized tours of some of the most relevant historical and cultural sites in the city.

What to Send
The aim of this interdisciplinary conference and collaborative networking event is to bring together academics, professionals, practitioners, NGOs, voluntary sector workers and many more in the context of a variety of formats: papers, seminars, workshops, panels, q&a’s, performances etc.

300 word reviews of your proposed contribution (paper abstracts, proposals for workshops, collaborative works or round tables, overviews of artistic projects or any other relevant forms of participation you are interested in) should be submitted by Friday 27th October 2017

All submissions will be minimally double reviewed, under anonymous (blind) conditions, by a global panel drawn from members of the Project Advisory Team and the Advisory Board. In practice our procedures usually entail that by the time a proposal is accepted, it will have been triple and quadruple reviewed.

You will be notified of the panel’s decision by Friday 3rd November 2017.

If your submission is accepted for the conference, a full draft of your contribution should be submitted by Friday 16th February 2018.

Proposals may be in Word, PDF, RTF or Notepad formats with the following information and in this order:
a) author(s), b) affiliation as you would like it to appear in the programme, c) email address, d) title of proposal, e) body of proposal, f) up to 10 keywords.

E-mails should be entitled:  End of Life Submission

Where to Send
Abstracts should be submitted simultaneously to the Organising Chair and the Project Administrator:

Nate Hinerman: nphinerman@usfca.edu
Project Administrator: lisbonendoflife@progressiveconnexions.net

Lisbon 2018 Details and Information

Registration Fees

The cost for attending the conference, including the guided tour, is £275.
(Please note: in exceptional circumstances this may fluctuate depending on the £ - € exchange rate).
This includes:

~ conference registration fee
~ 3 hour guided (walking) tour
~ Saturday coffee/tea on arrival
~ Saturday morning coffee and biscuits
~ Saturday lunch
~ Saturday afternoon tea and biscuits
~ Saturday evening wine and drinks reception
~ drinks in the conference room
~ Sunday morning coffee and biscuits
~ Sunday lunch
~ Sunday afternoon tea and biscuits
~ drinks in the conference room
Calendar of time-lines and deadlines

Friday 20th October 2017
Proposal Submission deadline

Friday 3rd November 2017
Acceptance/Rejection notification

Friday 24th November
Booking Form Submissions

w/b Monday 4th December 2017
Circulation of Draft Programme

by Friday 8th December 2017
Invoices issued

Friday 12th January 2018
Final date for payment

Friday 26th January 2018
Circulation of Revised Programme

Friday 2nd February 2018
Final programme to website and to printing.

Friday 16th Feburary 2018
Full draft of presentation to be submitted.
The conference is being held at the Real Palácio Hotel Lisbon.

Rua Tomás Ribeiro 115
1050-228 Lisboa - Portugal
Tel: (+351) 213 199 500; Fax: (+ 351) 213 199 501

We have reserved rooms for delegates at the conference hotel on favourable terms and conditions. On having a proposal accepted for presentation at the conference, and on the completion and submission of a booking form, a special booking form will be sent to you along with instructions on how to use it in order to access these terms..

Standard Room - Singe Occupancy
€88 per night including breakfast and all taxes

Standard Room - Double/Twin Person Occupancy
€98 per night including breakfast and all taxes

Details will be sent to delegates on how to access these rates once receipt of the booking form has been confirmed.

Accommodation bookings are made directly with the hotel, not Progressive Connexions. All payments for accommodation are made directly to the hotel as well. A credit card will be required on booking.

You are free to find alternative accommodation. We are offering these arrangements as a convenience to folks who would like to be at the conference venue.
The conferences, meetings and events we organise are not single ‘one-off’ events. They are part of a continual stream of conversations, activities and projects which grow and evolve in different directions. At the conclusion of every meeting, the question needs to be considered: What happens next? After all, there is little personal, educational or professional benefit in gathering people together from around the world and sharing all sorts of fascinating conversations if nothing further is going to happen as a result!

The possible ranges of ‘outputs’ which can productively flow from our meetings is a dynamic response to the dialogues, issues and engagements that take place during the events themselves. And as our meetings are attended by folks who come from different backgrounds, contexts, professions and vocations, what people would like to see developed as a result of our time spent together will always be potentially diverse, fluid and appropriate to what took place.

One range of possible outputs involves publication as a way of continuing the work of a project. Where publishing is a possibility, it is directly referenced in the Call for Papers, Presentations and Participation. Other possible outputs may include, but are not limited to:
~ social media platforms such as Facebook pages and groups, blogs, wikis, Twitter, as vehicles for continuing dialogues, disseminating knowledge and information and bringing new people into the work of the project
~ reviews; reports; policy statements; position papers/statements; declarations of principles
~ proposals for meetings, workshops, courses, schools
~ collaboration gateways, platforms and media
~ personal and professional development opportunities: faculty development; mentoring programmes; cultural cruises; consultancies; summer schools; personal enrichment programmes

The range of outputs is dependent on how little or how much you would like to become involved. Don’t let the end of the meeting signal the end of your involvement with the project. Please get involved, bounce ideas around, think out loud – we’d love to hear about what you’d like to do and are always happy to talk about what is possible.
Payment Process
Participants must complete the online booking form by Friday 24th November 2017 at the latest.
After the deadline has expired, an invoice will be drawn up and sent to you; the invoice will contain all the necessary information for you to pay by bank transfer, cheque, Paypal or credit card.
The invoice must be settled by Friday 12th January 2018.

It is the responsibility of delegates to ensure that payment is made by this date. Failure to receive payment will result in your booking being cancelled.

Payment Methods
There are a number of ways payment can be made.

Cheque
Payment can be made by cheque, in GBP (£ sterling) only and must be drawn against a bank with headquarters in the United Kingdom. Cheque’s should be made payable to ‘Progressive Connexions’ and sent, with a copy of the booking form, to:

Dr Rob Fisher
Progressive Connexions
Priory House
149b Wroslyn Road
Freeland
Oxfordshire. OX29 8HR
United Kingdom

We cannot and will not accept cheques made payable in currencies other than GBP Sterling.

Bank Transfer Payment may be made using bank transfer. There will be an option to pay in either GBP (£ Sterling) or Euro (€). Full details to enable a bank transfer are made available on your conference invoice. If paying by this method, you must agree to pay all charges at the sending and receiving banks.

By Invoice
You may request that an invoice be sent to you which you may forward to your institution. It is your responsibility to ensure that the invoice is paid before the payment deadline.

Online
Your invoice will include a link to pay through a secure and encrypted online payment system. Please click the link to use this method. Please also be aware that credit card charges apply.

Credit Card
Payment may also be made using credit card. We cannot accept American Express or Discovery as a form of payment.

Paypal
Payment may also be made using Paypal. If paying by this method please send us the email account connected with your Paypal account and we will forward you a request for payment.

IMPORTANT
We strongly recommend that all delegates take out some form of travel or other insurance in relation any and all travel arrangements or accommodation booked in regard to the conference. This should include cancellation insurance in the event of unforeseen or unexpected circumstances.

All fees are payable in advance. No delegate will be permitted entry to the conference if an invoice is still unpaid.

Ethos
Progressive Connexions believes it is a mark of personal courtesy and professional respect to your colleagues that all delegates should attend for the full duration of the meeting. If you are unable to make this commitment, please do not submit an abstract or proposal for presentation.

Please note: Progressive Connexions is a not-for-profit network and we are not in a position to be able to assist with conference travel or subsistence, nor can we offer discounts off published rates and fees.