It is a rare individual who has not experienced being a patient or caring for a patient. With the global spread of the COVID-19 pandemic, millions of people have suddenly assumed the role of patients needing urgent, life-saving care. From daily tallies of COVID-19 cases and deaths to media coverage of issues around availability of ventilators, personal protective equipment, therapeutic medicines and vaccine, we are inundated with constant reminders of how prevalent the patient and patient concerns have become to our communities. It is therefore an opportune moment to reflect on what it means to be a patient at the turn of the second decade of the 21st Century.
In the modern Western medical tradition, the patient experience means interactions with doctors, nurses, prescribed treatment regimens and hospital/clinical settings. Alternatively, the patient experience may mean undergoing more holistic, traditional healing practices of China, India and Indigenous peoples. However, not all conditions, patients and modes of care are recognised and valued equally. Some of the factors that influence individual and community perceptions include the circumstances that cause a person to need care, whether a person has a visible or invisible condition, and the ethnicity, gender, sexual orientation and class of the person needing care. Likewise, those who care for patients – whether it be a neurosurgeon, a practitioner of traditional remedies or in-home nurse’s aide – are valued differently and receive varying degrees of social recognition, which may also be inflected by attitudes about race, gender and nationality. At the same time, the roles of patient and care-provider have been blurred by the pervasiveness of the internet, and the rise of self-diagnosis and DIY treatments facilitated by Dr Google. While there is no doubt that the internet has provided a valuable tool for enhancing patient education and agency, it can also be a dangerous substitute for care by a qualified professional.
It is essential to examine the full range of historical, political, economic, medical, technological, cultural, sociological and creative forces that shape the way the roles of patient and caregiver are constructed and understood. This means looking to personal stories of patients and caregivers as a valuable repository of knowledge. This means asking questions about how these roles are inflected by race, class, nationality, gender, sexual orientation and age; what the ideal patient experience ought to be and how that might inform best practice for treatment; how patient agency can be enhanced, how patients and caregivers can be supported through social policy, legal frameworks and non-structural methods; how creative practice can support patients as both a source of therapy and a tool for shaping public attitudes; how advocates for patients and caregivers can generate desired outcomes; how often controversial health care issues such as physician-assisted dying/euthanasia, stem cell treatment, abortion, etc. can be resolved in patient-centric ways; and how technology generally can be harnessed most effectively to assist patients.
The Patient conference aims to provide a platform for exploring these and other related aspects of the patient and caregiver experience from inter-disciplinary perspectives.
Key topics, themes and issues for discussion may include, but are definitely not limited to:
What To Send
The aim of this interdisciplinary conference and collaborative networking event is to bring people together and encourage creative conversations in the context of a variety of formats: papers, seminars, workshops, storytelling, performances, poster presentations, panels, q&a’s, round-tables etc.
At the end of the conference we will be exploring ways in which we can develop the discussions and dialogues in new and sustainably inclusive interdisciplinary directions, including research, workshops, publications, public interest days, associations, developing courses, etc which will help us make sense of the topics discussed during the conference and ensure that our efforts are continued in our own communities.
300 word proposals, presentations, abstracts and other forms of contribution and participation should be submitted by Friday 20th November 2020. Other forms of participation should be discussed in advance with the Organising Chair.
All submissions will be minimally double reviewed, under anonymous (blind) conditions, by a global panel drawn from members of the Project Development Team and the Advisory Board. In practice our procedures usually entail that by the time a proposal is accepted, it will have been triple and quadruple reviewed.
You will be notified of the panel’s decision by Friday 4th December 2020.
If your submission is accepted for the conference, a full draft of your contribution should be submitted by Friday 9th April 2021
Abstracts and proposals may be in Word, PDF, RTF or Notepad formats with the following information and in this order:
a) author(s), b) affiliation as you would like it to appear in the programme, c) email address, d) title of proposal, e) body of proposal, f) up to 10 keywords.
E-mails should be entitled: The Patient Submission.
Where To Send
Details and Information
The cost for attending the conference is £295/€335. This includes:
~ conference registration fee
~ book of Abstracts
~ a discounted rate for any of the outputs emerging from the event
~ Friday coffee/tea on arrival
~ Friday morning coffee and biscuits
~ Friday lunch
~ Friday afternoon tea and biscuits
~ Friday evening wine and drinks reception
~ drinks in the conference room
~ Saturday morning coffee and biscuits
~ Saturday lunch
~ Saturday afternoon tea and biscuits
~ drinks in the conference room
Calendar of time-lines and deadlines
Friday 20th November 2020
Friday 4th December 2020
Friday 15th January 2021
Booking Form Submissions
by Friday 29th January 2021
Circulation of Draft Programme
Friday 5th March 2021
Final date for payment
Friday 9th April 2021
Circulation of Revised Programme
Full draft of presentation to be submitted
Friday 25th April 2021
Final programme to printing
Radlicka 3216/1g. 15000 Prague +420 234 801 111
We have reserved rooms for delegates at the conference hotel on favourable terms and conditions. On having a proposal accepted for presentation at the conference, and on the completion and submission of a booking form, a special booking form will be sent to you along with instructions on how to use it in order to access these terms.
Details will be sent to delegates on how to access these rates once receipt of the booking form has been confirmed.
Accommodation bookings are made directly with the hotel, not Progressive Connexions. All payments for accommodation are made directly to the hotel as well. A credit card will be required on booking.
You are free to find alternative accommodation. We are offering these arrangements as a convenience to folks who would like to be at the conference venue.
The conferences, meetings and events we organise are not single ‘one-off’ events. They are part of a continual stream of conversations, activities and projects which grow and evolve in different directions. At the conclusion of every meeting, the question needs to be considered: What happens next? After all, there is little personal, educational or professional benefit in gathering people together from around the world and sharing all sorts of fascinating conversations if nothing further is going to happen as a result!
The possible ranges of ‘outputs’ which can productively flow from our meetings is a dynamic response to the dialogues, issues and engagements that take place during the events themselves. And as our meetings are attended by folks who come from different backgrounds, contexts, professions and vocations, what people would like to see developed as a result of our time spent together will always be potentially diverse, fluid and appropriate to what took place.
One range of possible outputs involves publication as a way of continuing the work of a project. Where publishing is a possibility, it is directly referenced in the Call for Papers, Presentations and Participation. Other possible outputs may include, but are not limited to:
~ social media platforms such as Facebook pages and groups, blogs, wikis, Twitter, as vehicles for continuing dialogues, disseminating knowledge and information and bringing new people into the work of the project
~ reviews; reports; policy statements; position papers/statements; declarations of principles
~ proposals for meetings, workshops, courses, schools
~ collaboration gateways, platforms and media
~ personal and professional development opportunities: faculty development; mentoring programmes; cultural cruises; consultancies; summer schools; personal enrichment programmes
The range of outputs is dependent on how little or how much you would like to become involved. Don’t let the end of the meeting signal the end of your involvement with the project. Please get involved, bounce ideas around, think out loud – we’d love to hear about what you’d like to do and are always happy to talk about what is possible.
Participants must complete the online booking form by Friday 15th January 2021 at the latest.
After the deadline has expired, an invoice will be drawn up and sent to you; the invoice will contain all the necessary information for you to pay by bank transfer, cheque, Paypal or credit card.
The invoice must be settled by Friday 29th January 2021.
It is the responsibility of delegates to ensure that payment is made by this date. Failure to receive payment will result in your booking being cancelled.
There are a number of ways payment can be made.
Payment can be made by cheque, in GBP (£ sterling) only and must be drawn against a bank with headquarters in the United Kingdom. Cheques should be made payable to ‘Progressive Connexions’ and sent, with a copy of the booking form, to:
Dr Rob Fisher
149b Wroslyn Road
Oxfordshire. OX29 8HR
We regret we cannot and will not accept cheques made payable in currencies other than GBP Sterling.
Bank Transfer Payment may be made using bank transfer. There will be an option to pay in either GBP (£ Sterling) or Euro (€). Full details to enable a bank transfer are made available on your conference invoice. If paying by this method, you must agree to pay all charges at the sending and receiving banks.
You may request that an invoice be sent to you which you may forward to your institution. It is your responsibility to ensure that the invoice is paid before the payment deadline.
Your invoice will include a link to pay through a secure and encrypted online payment system. Please click the link to use this method.
Payment may also be made using credit card. We cannot accept American Express or Discovery as a form of payment.
Payment may also be made using Paypal. If paying by this method please send us the email account connected with your Paypal account and we will forward you a request for payment.
We strongly recommend that all delegates take out some form of travel or other insurance in relation to any and all travel arrangements or accommodation booked in regard to the conference. This should include cancellation insurance in the event of unforeseen or unexpected circumstances.
All fees are payable in advance. No delegate will be permitted entry to the conference if an invoice is still unpaid.
What’s so Special?
A fresh, friendly, dynamic format – at Progressive Connexions we are dedicated to breaking away from the stuffy, old-fashion conference formats, where endless presentations are read aloud off PowerPoints. We work to bring you an interactive format, where exchange of experience and information is alternated with captivating workshops, engaging debates and round tables, time set aside for getting to know each other and for discussing common future projects and initiatives, all in a warm, relaxed, egalitarian atmosphere.
A chance to network with international professionals – the beauty of our interdisciplinary events is that they bring together professionals from all over the world and from various fields of activity, all joined together by a shared passion. Not only will the exchange of experience, knowledge and stories be extremely valuable in itself, but we seek to create lasting, ever-growing communities around our projects, which will become a valuable resource for those belonging to them.
A chance to be part of constructing change – There is only one thing we love as much as promoting knowledge: promoting real, lasting social change by encouraging our participants to take collective action, under whichever form is most suited to their needs and expertise (policy proposals, measuring instruments, research projects, educational materials, etc.) We will support all such actions in the aftermath of the event as well, providing a platform for further discussions, advice from the experts on our Project Advisory Team and various other tools and intellectual resources, as needed.
An opportunity to discuss things that matter to you – Our events are not only about discussing how things work in the respective field, but also about how people work in that field – what are the struggles, problems and solutions professionals have found in their line of work, what are the areas where better communication among specialists is needed and how the interdisciplinary approach can help bridge those gaps and help provide answers to questions from specific areas of activity.
An unforgettable experience – When participating in a Progressive Connexions event, there is a good chance you will make some long-time friends. Our group sizes are intimate, our venues are comfortable and relaxing and our event locations are suited to the history and culture of the event.
Progressive Connexions believes it is a mark of personal courtesy and professional respect to your colleagues that all delegates should attend for the full duration of the meeting. If you are unable to make this commitment, please do not submit an abstract or proposal for presentation.
Please note: Progressive Connexions is a not-for-profit network and we are not in a position to be able to assist with conference travel or subsistence, nor can we offer discounts off published rates and fees.